Additional resources for chronic lymphocytic leukemia (CLL) patients

Knowing where to turn to for help is often the first step.

When you’re living with CLL, you’re not alone. There are many organizations that can give you, or a loved one, the information and support you need.

Here are some places you can turn to. Some of these organizations are dedicated to exclusively providing information about leukemia, while others have information on all types of cancers.

American Cancer Society (ACS)
Provides patients, family and friends with up-to-the-minute information on the prevention, detection, and treatment of cancer. The Web site can also help you find support groups and opportunities for volunteering in your community.
Phone: 800-ACS-2345 (800-227-2345)

American Society of Hematology
The world’s largest professional society concerned with the causes and treatments of blood disorders. Through research, clinical care, education, training, and advocacy, the Society furthers the understanding, diagnosis, treatment, and prevention of disorders affecting the blood and bone marrow.
Phone: 202-776-0544

Association of Cancer Online Resources (ACOR)
This site helps you connect with others who have similar cancers by providing access to more than 150 mailing lists. You can log on for free, to participate in unmoderated discussion with patients, family, friends, doctors, and researchers.
Phone: 212-300-5900

Cancer Care Connection
This free public service provides individuals and families affected by cancer with personal coaching, Internet navigation assistance, and other useful information and resources. This site can help you gain control of your health situation, access support, and find resources to meet your health and quality-of-life needs.
Phone: 866-266-7008

Cancer Hope Network
An organization that can provide you or family members with free, confidential, one-on-one support by matching patients and family members with trained volunteers who are cancer survivors themselves.
Phone: 877-HOPENET (877-467-3638) or 908-879-4039

Cancer.net
The ASCO Cancer Foundation is dedicated to improving the lives of people with cancer by advancing cancer research, patient information, physician education, and access to care. It can provide you with the latest on research, treatment, and care.
Phone: 888-651-3038

Coping With Cancer Magazine
This online magazine provides cancer patients, their families, caregivers, healthcare teams, and support group leaders with knowledge, hope, and inspiration.
Phone: 615-790-2400

Leukemia & Lymphoma Society (LLS)
The world's largest voluntary health organization dedicated to funding blood cancer research, education and patient services. LLS's mission is to cure leukemia, lymphoma, Hodgkin's disease and myeloma, and improve the quality of life of patients and their families.
Phone: 1-800-955-4572

National Coalition for Cancer Research (NCCR)
A coalition committed to improving the quality of life of cancer patients throughout the world through financial relief, research, and education. NCCR works to reduce the suffering of cancer patients and their families by meeting unfulfilled needs with medical and financial relief.
Phone: 919-821-2182

National Coalition for Cancer Survivorship (NCCS)
The oldest survivor-led cancer advocacy organization in the country advocates for quality cancer care for all Americans and seeks to empower cancer survivors and advocates for policy issues that affect quality of life for cancer survivors.
Phone: 877-622-7937

National Cancer Institute (NCI)
Part of the National Institutes of Health (NIH), the NCI conducts and supports research and training and can provide you with the latest information and educational materials.
Phone: 800-4-CANCER (800-422-6237)

Prevent Cancer Foundation
A foundation focused on cancer prevention through early detection, funding research, educating the public, and community outreach to all population groups.
Phone: 703-836-4412 or 800-227-2732

Cancer Support Community
Gilda’s Club and the Wellness Community have combined forces to create a national non-profit organization that provides support, education and hope to people with cancer and their loved ones. The combined organization has nearly 50 local affiliates, 12 affiliates in development and over 100 off-site and satellite locations.
Phone: 202-659-9709

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